I remember just after Elie was born in the early morning hours on December 28th saying aloud that she was a Wednesday’s child, but not immediately remembering from the rhyme what that was. The attending physician began reciting it as if to also remember …
Monday’s child is fair of face,
Tuesday’s child is full of grace,
Wednesday’s child is full of …
… only to trail off when he got to that point and then muttering that he too couldn’t recall. I suspect it really came to him as it did to me. Wednesday’s child is full of woe. Not being superstitious I remember smiling at the doctor’s sudden forgetfulness.
We received Elie’s diagnosis on Wednesday March 14th, so I guess it was altogether fitting that she chose this morning, Wednesday June 27th to say goodbye to us, taking her last breaths in our arms, a day shy of her 6 month birthday. She was just as beautiful on her last day as she was her first.
We are feeling tired and empty and will miss her dearly for every day of our own lives, but thankful to be surrounded by family and comforted by our friends, colleagues and the many members of our medical team who grew to love her just as much as we did.
For those of you who have been following this blog these many months, it should be known we paid little attention to the poem. Our goal became to keep our baby girl as happy and comfortable as possible despite her uncertain future. There were many hours spent playing, reading, singing, swimming and taking Elie with us on long walks. Balloons and kaleidoscope apps were favorites. Time spent with our families and friends were also special, a trip to Charleston for her Aunt Dana’s wedding particularly memorable.
For all who have kept us in your thoughts, hearts and prayers these many months, thank you.
Rest in peace Elie Bean.