Monday morning Elie went unresponsive and stopped breathing – her heart rate dropping to around 20 BPM. Nurse Agnes and Mari were able to successfully administer extra oxygen and rescue breaths so that by the time the paramedics arrived, Elie was breathing on her own again. Following a short ride to the hospital she was admitted back to the PICU, under the excellent care of many of the same CHOA doctors and nurses that looked after Elie following her G-tube surgery a few weeks ago.
We will likely be here a while. Despite our best efforts (increased frequency of cough assist and albuterol), the atelectasis in her right lung has gotten worse and is also now affecting her left lung. Her respiration rate is slowing and she requires more oxygen to keep her saturation levels up. Her daily naps are increasing in both frequency and duration. She often breaks into cold sweats and her cries are growing weaker. As our pulmonologist put it to us last week, she’s running a marathon every day.
We’re continuing to work with our GI docs to come up with a better plan to address her nutrition. The respiratory therapy is pushing air into her stomach as well as her lungs, leading to the bloating and discomfort that results in her vomiting.
While Elie is often anxious she doesn’t appear to be in any significant amount of pain. In between all her evaluations and treatments we’ve been reading to her, playing music and watching videos. Cousin Erin is visiting with us as I write this and we’re expecting Uncle Rob to stop by later this evening.
Thanks as always for keeping us in your thoughts.